Monthly Meetings: in normal times, we meet monthly on the third Saturday at 10 am, September through May. During the Oregon COVID-19 shutdown, we are holding virtual meetings on the same schedule, using Zoom. To be notified of every meeting, please email us and ask to be on our newsletter email list.
Anyone affected by hearing loss is welcome, whether it’s your own or a family member’s or friend’s. You don’t need to join or pay any dues to participate in our meetings.
Who We Are Our Portland chapter is dedicated to providing a supportive atmosphere for you to meet other hard of hearing people and learn about issues related to hearing loss. During the school year, we have monthly chapter meetings open to anyone interested in hearing loss. We are one of many local chapters of the Hearing Loss Association of America, HLAA.
New to Hearing Loss? If you’re just starting to learn about hearing loss, please check out hearingloss.org/, the website of our national organization, the Hearing Loss Association of America. There is so much useful information there; click on all the topics: Hearing Help, Support, Online Community, Events, Advocacy and Membership.
Newsletter We send out an email newsletter before each monthly meeting, Sept through May, and occasionally send other messages. Please click on this link: Sign Up for Our Newsletter to be added. We welcome you!
If you'd like to get e-news messages from national HLAA, you can sign up by going to hearingloss.org and click on "E-NEWS SIGNUP". They send about two messages each week.
Membership Individual membership in the national Hearing Loss Association of America (HLAA) costs just $45.00/year. For information or to join, go to HLAA's home page, www.hearingloss.org. These dues support activities of the national organization in Bethesda (Maryland) and entitle you to membership in the local and state organizations. HLAA’s very helpful magazine is sent to members every other month.
It is not necessary to be a member to attend Portland Chapter monthly meetings; everyone affected by hearing loss is welcome. We do welcome your donations directly to our chapter, HLAA – Portland, as well (tax deductible, 501-c-3), mailing address above!
Our Chapter Meetings
Our current meeting time is 10 am on the third Saturday of each month, September through May. During the COVID-19 period, we meet virtually, using the Zoom platform. June-July-August: Summer Break, no meetings
To confirm the day and time for a specific meeting, check this web page before the meeting or, better yet, sign up for the newsletter using the link above or email us at hlaportland@gmail.com.
Our monthly chapter meetings are real-time captioned (CART) and when we meet in person, we use an induction loop system (usable by wearers of hearing devices equipped with telecoils).
In response to feedback from the group, we are having open discussions at most meetings, rather than scheduling a professional to speak on a specific topic. So please come with your questions and concerns about anything to do with hearing loss, yours or a loved one’s. If you use any device or gadget to help cope, such as an assistive listening device, please bring it to show to others.
Our current Board Members President: Mark Foster Vice-President: vacant Treasurer: Sonia Reynolds Secretary: vacant Members at large: Judy Barnes, and Marv Lurie
Board membership is limited to seven people. All must be current members of HLAA, our national organization.
Newsletter Editor: Anne McLaughlin
2021 HLAA Convention Information
This year’s national HLAA conference will be virtual, held June 24-25. Every HLAA Convention includes a Research Symposium. This year’s symposium topic is: Hearing Care for All: Innovations in Extending the Reach of Hearing Care, and will be on Friday, June 25. The 2021 Research Symposium is supported by the National Institute on Deafness and Other Communication Disorders (NIDCD), National Institutes of Health (NIH). In the United States, most people with hearing loss do not receive hearing health care. How can we do better? This research symposium will feature some of the latest advances in delivering hearing care to communities traditionally unserved by clinic-based hearing care, including remote Alaska villages, older adults along the U.S.-Mexico border, and low-income older adults in Baltimore. In these settings, care is provided by a range of providers from community health aides to peer mentors. The HLAA Research Symposium will feature talks by three national leaders in hearing care that bring a range of expertise and perspectives to meeting the hearing care needs of Americans, from children to older adults, and beyond. It will also include a panel of community-based health care providers who are the on-the-ground experts in this field.
Symposium Chair Carrie Nieman, M.D., M.P.H., Assistant Professor of Otolaryngology-Head and Neck Surgery, Johns Hopkins University School of Medicine
Speakers: Carrie Nieman, M.D.: Introduction Susan Emmett, M.D., MPH – Tele–audiology and Hearing Care in Alaska Nicole Marrone, Ph.D., CCC-A – Community Health Workers and Hearing Care at the U.S.-Mexico Border Sarah Szanton, Ph.D. – CAPABLE Project (Community Aging in Place-Advancing Better Living for Elders) Carrie Nieman, M.D. – HEARS Peer Educators in Action: Older Adults Serving Older Adults Round Table of the New Frontline Hearing Care Providers This discussion will feature peer educators from HEARS (Hearing Equality through Accessible Research and Solutions), community health aids from Alaska, and community health workers from Arizona. All sessions will be captioned. For more info on the specific schedule and topics, go to https://www.hearingloss.org/programs-events/convention/
The schedule for future Conventions is
2022: Tampa, June 23-25, JW Marriott Tampa
2023: New Orleans, June 27-July 2, New Orleans Marriott
The HLAA convention is always a very welcoming event for people with any level of hearing loss. It gives attendees a chance to learn about coping techniques, new technology, develop leadership skills, and much more, to meet others who understand hearing loss, and – maybe best of all – to enjoy all this in an environment where everything possible is being done to assist your participation: live captioning, hearing loops, and speakers who pay attention to your hearing needs. Plus the virtual Exhibit Hall offers you a look at the newest technology: captioned phones, assistive listening devices, “shake and wake” alarm clocks, and much more.
You may watch recordings of presentations at last June’s 2020 Virtual Convention at: https://www.hearingloss.org/programs-events/convention/experience-hlaa/
Useful Links
Former Chapter President Mark Foster provides an explanation of Assistive Listening Devices (ALDs) as well as useful links for ALDs and using technology with hearing loss. Download It Get information on Oregon Communication Project (OR-CAP), an organization that works with hearing-impaired members to gain compliance with Oregon state and Federal disability law. OR-CAP’s past successes include open captioning at Portland Trail Blazer games at the Moda Center. Learn more about OR-CAP here
Flash, Shake & Wake: Portland Fire Dept. Offers Free Alarms for Portlanders with Hearing Disabilities
A Portland Fire and Rescue program provides free specialized alarms to Portlanders with hearing loss. These alarms utilize bed shakers and strobe lights to warn those who can’t hear audible alarms about imminent danger from either fire or carbon monoxide. The program is jointly funded by FEMA and the City of Portland.
Portland Fire and Rescue staff install the alarms and provide information on using them. For details and to submit an application, go to https://www.portlandoregon.gov/fire/68951. If you do not live within Portland city limits, check with your local fire department for a similar program.
Accessibility of Public Services
Talking back to your TV set
Do you have a complaint about the captioning on your TV? To make a complaint, first contact the local broadcast station or your cable or satellite provider. To get the station’s contact info for captioning issues, go to https://publicfiles.fcc.gov/ and enter the station's call sign, e.g., KATU or KPTV, or the zipcode for cable providers.
If you are not satisfied with the response you get from the station or service provider, the above website will also tell you how to make a complaint to the FCC itself. In addition, the FCC has info on captioning requirements and complaints for videos you see on the internet: https://www.fcc.gov/general/closed-captioning-video-programming-television
A Portland success: Captions on TVs in Public Places; How can we make this requirement truly effective?
In November 2015, the Portland City Council voted unanimously to require that televisions in public places in Portland must display captioning. The requirement applies also at places where membership or an entrance fee is required, such as TVs at gyms.
The ordinance relies on us to help inform local businesses and get them into compliance. For help informing local businesses of the requirement and, if necessary, enforcing it, go tohttps://www.captionsonnow.net/
No-Cost Captioned Phones and Tablet Computers Available on Loan
The State of Oregon Public Utilities Commission (PUC) has three programs to assist Oregon residents with telephone communications.
The Oregon Lifeline reduces monthly telephone bills for Oregonians receiving qualifying benefits.
A relay service that allows a person with a hearing or speech disability to place and receive phone calls.
The PUC's third program is the Telecommunication Devices Access Program (TDAP), which loans adaptive telecommunication devices at no cost and with no income restrictions to eligible Oregonians. TDAP can provide only one device per person. Loaned assistive devices include captioned phones, amplified phones, and iPads.
Movie Lovers: There are many captioned movies in the Portland area
In the greater Portland area, there are at least 10 movie theaters where you can see movies with captions.
Several local independent theaters provide CaptiView caption decoders for many movies. They are Cinema 21 on NW 21st Avenue, the NW Film Center at the Portland Art Museum on downtown’s South Park Blocks, the Hollywood Theater on NE Sandy Blvd., and all the McMenamins theaters (Bagdad, Edgefield, St Johns Theater & Pub, Mission Theater, Kennedy School, Grand Lodge in Forest Grove, Old St Francis in Bend, Olympic Club in Centralia and Anderson School in Bothell WA).
All three Cinemark/Century theaters offer free caption CaptiView decoders for most movies.
At each theater, you just need to ask for a captioning device when you buy your ticket. You may be asked to leave your driver's license as security. A Caveat: Because not all movies are distributed with captions encoded, be sure to check with the theater beforehand to make sure the movie you want to see is captioned. For Cinemark/Century only: go to the chain website or fandango, enter your zipcode, pick a venue from the resulting list, the "CC" icon indicates movies with captions. Fandango’s listings for other theaters do not include captioning info. For other theaters, contact the theater directly.
Cinema 21: Call the theater 503-223-4515, or email info@cinema21.com. The theater website is at cinema21.com but doesn't give info on which movies might be captioned.
Hollywood Theater: Call the theater 503- 493-1128, or email info [at] hollywoodtheatre [dot] org. The theater website is at hollywoodtheatre.org/ but doesn't give info on which movies might be captioned.
For the national Cinemark/Century chain venues, the website Fandango also indicates when/where captions are offered; type in your zip code for local showtimes and look for "Closed Caption" or “Open Caption” above the list of show times.
When will more theaters offer and publicize captioned movies? That's probably up to you / each of us.
None of the venues that already have captioning devices does very much to publicize their devices or the movies that have captions. Please consider giving these theater managers polite and constructive feedback on the availability and use of these devices, and ask them to publicize their availability better. For the theaters that don't offer caption decoding devices, or open captioned screenings, please let them know you would love to patronize them but need captions. Most movies are now distributed with captions. Theater managers can choose to turn them on so everyone can see them ("open captioning") at selected screenings (a low-cost option), or they can purchase and provide viewers with caption decoders like the ones at Cinema 21, Hollywood, McMenamins and Cinemark/Century venues. But if no one ever asks them for captions, they're unlikely to take either step. So ask them.
We would appreciate hearing from anyone who knows about any other local venues that provide captions in any form (e.g., using devices like those used at the chains, or regularly scheduling and publicizing open-captioned screenings). Email us at hlaportland@gmail.com.
Captioning at Local Live Theater
At the time the COVID-19 pandemic caused their shutdown, three local venues offered open-captioned performances of productions on their stages: Portland Center Stage, Artists' Repertory Theatre and Broadway In Portland. Each venue would offer a single open captioned (OC) performance of most or all of their shows. When the pandemic has ebbed and live theaters can reopen, we will provide updated information about captioned performance offerings.
11 Questions People with Hearing Loss Should Ask Prior To Staying In A Hospital
By Janice Lintz, published in the Huffington Post, 6/28/16:
"Being a patient with a hearing loss does not have to be frightening but preparation is needed. It is important to contact the hospital as far in advance as possible to discuss and request aids or services that may be needed. Hospitals should have a designated person/office to whom such requests should be made and to whom patients can contact in the event the hospital fails to provide the requested accommodations.
"The following are recommended questions to ask your doctor and hospital prior to your stay, such as:
"Can your hearing aids/cochlear implant processors stay in/on during surgery or until you fall asleep?"
Our parent organization, the Hearing Loss Association of America, regularly offers one-hour webinars (interactive online seminars) on topics of interest to people dealing with hearing loss. They are first shown live, usually on Wednesday afternoons about once a month. The next one will be at 3pm on Wednesday, Sept 18, Hearing Technology Outcomes Matter: Speech Perception Testing
For future webinars, and recordings of past webinars, go to https://www.hearingloss.org/programs-events/webinars/schedule-recordings/ Webinars are recorded and can be watched later. If you're participating in a live webinar (not watching a recording later), you can usually send in questions for the speaker. All HLAA webinars are free and captioned. If you've never watched a webinar before, give it a try. It can be fun as well as informative.
Past webinar recordings you can watch online anytime include:
Kid APProved! Getting and Using Apps on your Devices
OTC Hearing Aids: Rationale for Support
A Patient’s Guide to Tinnitus
Wait – There’s a Student with Hearing Loss Coming into My Class?
Let's Caption the World
The "ditto," a small wearable device notifies you when your smartphone has an incoming call, text or other message. (A Product Showcase)
Nurturing Resilience In the Face of Hearing Loss
I Survived the Holidays....Barely!
Aging America and Hearing Loss
CapTel Captioned Telephone (A Product Showcase)
Equal Access to Health Care Services for Individuals with Disabilities
A Smartphone Is a Hearing Assistive Technology
Many articles and files on this site are in pdf format. Viewing articles and files requires the use of Adobe Reader, a FREE application that can be downloaded to your computer. Get Adobe Reader.
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